Tag Archives: friendship

Twinkle Toes: A Love Story to Dementia Dad.

The Sea Island sun blinds me when I look up to see your face. I stop-salute you and squint to block it from my eyes. You and your mustached-face looks down at me, smiling. You reach down to grab my nose and peek your thumb out of your knuckle sandwich. You hold it up and say, “got your nose!

Give it Back!” I yell, but I’m laughing and I’m chasing your serpentine. Back and forth, in and out of the water. I follow your footsteps and try to match them. I put my foot inside yours and I squish it all around. The waves are awfully loud, but I love them and then you grab me and give me my nose back.

I love any beach or water anywhere forever and ever and it’s because of moments like this. It’s safe, you are relaxed and it just means love. I have to run fast to keep up: one-two-three-four Heathersteps, in and out of the water, equal one big Daddystep. You laugh and stop and wait for me. Then you grab my hand. It’s so windy and the waves are so big and they break the silence in a way that makes me close my eyes and be happy. It smells so good. You are so tall and I look up at you and you laugh out the words, “hurry up, twinkle toes.”

I giggle when you take the shells I give you and you say “Ooooooooh, that’s a good one“.

I feel proud that I picked it and you put it in your pocket. I am twirling round and round with the sand between my toes. When I dizzy-stop, stumble and laugh, you are walking back. You’re done. I stop-salute and squint, watching you get smaller as you walk away. You yell back, “Go to mom now.

***

I’m a bad actor and I can’t fake it anymore. I am screaming inside and crying and keening and wailing. Every tiny cell of me is tired. We are now in Defcon 1. I can’t control you. You can’t figure out reason or make sense of anything. There are not people in the corners trying to hurt you. You are not being poisoned. We are not trying to kill you. I wish I could rescue you from the alien world that you are living in your head. It seems so scary and mean and awful. I’d give anything to Stranger Things you outta there.

I spend hours trying to show you how much I love you. Even when I am not with you, I still worry and wonder if you are ok. I’m so sad that you are leaving me; that you have already kind of left. The other night in the wee hours, you were yelling at me:

You do not care if I die.

You are out to get rid of me.

You are not on my team.

You don’t have my back.

When you say these things, I can handle it. Your words bounce off me onto the floor. I can step on them a little and kick them under the couch. I know you don’t mean it. I know you are sick. I am tough and I can fight them off.

Your face looks so different now. I remember being little and tracing your face with my fingertips. “Oops…got your nose.

I know you can no longer read your books; now it’s only faces. I am sorry that sometimes I don’t look at you when we talk. I try to make my face happy, but sometimes, I just can’t.

Feelings transition to some kind of desperation. I want someone there with me to see what I have to do. I need a wingman. I want someone to hug me. I need help with you. I need you to help me with you. I long for the dad I had, to give me advice about the dad I have now. I feel desert Island lonely.

This journey has given me some useful takeaways and Heather 2022 has a new criteria for friendship.: Choose the right people who deserve to hear your story. I love hearing stories of the people I love and I know they hear me back. There is nothing worse than realizing that someone don’t want all of the sides of you. I have been screaming from the inside of insides. I don’t have the energy to only listen and not be heard. I hope to replenish soon.

I think I am spending so much time writing this to procrastinate making phone calls. Calls to find somewhere we can move you away from the home that you worked so hard for and away from the life you knew. Can I call in a sub for this too? Inhale…exhale…

I took a night off from being with you last night to sleep in a real bed. Today, I head back to you and the couch. When I get in the car, I will cry. I will walk in the door with a smile. I will try not to lose it, but sometimes I do. You threw a box of tissues at me the other night. I karate-chopped it from my face and the box went flying. It was actually super funny. Wish you were there.

Love you,

Twinkle Toes

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Backstory.

Yesterday I did what I’m sure looked like an obligatory Facebook brag post. Especially to people who probably don’t have school-age children, or …any children. But the ones who had to hands-on watch their children navigate their education through a pandemic every day for the last year, I bet they got it.

I didn’t post that for myself. I already know how neat my kids are; I get to live with them every day. When I posted that, I posted that for her. Whether it helps her read it today or it helps her when she reads in 20 years, she needs a reminder that her mom loved her and what she overcame. She will see what I wrote, remember the lovely comments shared from people who are dear to us and see a picture of what she looked like at that moment.

Just because she did well and got straight A’s, doesn’t mean that she didn’t work. her. ass. off.

It’s not a scenario where things come easy to her, look at how perfect she is, blah, blah, blech. The real truth is that I watched her study and worry and plan and make goals and work really hard to finish them. That’s all on her.

And she did all of this basically sitting on a mattress, on her bedroom floor, surrounded by Cheetos’s, our loyal dog and a teenager amount of dirty laundry.

Please make no mistake, as a mother trying to help my children learn through a pandemic, I’m an idiot and can’t teach them anything, but I can online shop. I transformed the loft and I set up quite the beautiful school area. It had wonderful lighting and it was comfortable, with productive desks and chairs. I tried to give both her and her brother, who was enrolled in some CLC college courses, an environment where they could concentrate when they needed it, and then walk away when they were done.

I’m pretty sure they used it for about a week and a half. And I didn’t push them because this wasn’t about me doing all that work and me getting upset because they didn’t use it. (Truth: It gave me something else to do during the pandemic besides putting booze in my coffee and overeating. ) Nay, nay: It was about them being comfortable when everything around them made no sense.

Her freshman year in high school should’ve been filled with nervous giggles, experimenting with outfits every morning, walking to classes with new friends, sneaking out to get ice cream on her lunch break, walking in the halls and blushing when she passed somebody she had a crush on, laughing with her friends in the locker room about how much swimming class sucks with their period, going to a pep rally…going to a football game….going to Homecoming, going anywhere…with anyone…

Our walls are thin in our cookie cutter home. Her bedroom is next to mine. I know the sound of fear, frustration, angst, anxiety and sadness. Her teachers voices came out of her laptop sounding legit Charlie Brown. I heard late-night heated and passionate conversations, but couldn’t make out the words. Those emotion-filled moments made my tears run all the way down to my pillow.

But, there where lovely noises. She taught herself some pretty bitchin’ guitar playing. Her lovely voice, soft and lilting, wafted into the hallway. The strumming was comforting, the sounds of her trying to figure out the Bohemian Rhapsody solo, endless Fleetwood Mac. She had the lonely time to do that. l will cherish those sanguine sounds that seeped through my bedroom wall.

Another sound that didn’t make me feel sad to accidentally overhear: the laughter with her friends. They found a way to make the “pandemic sleepover” work; messy but still with laughter and love.

What one wouldn’t also post on social media is that she battled two significant and private medical issues that most don’t know about, and one very significant dental issue that meant literally 30 doctor and specialized dentist appointments in a year. In one year. In a pandemic.

Could she cry to her friends at the table in the lunch room, where she could get hugs and whispers of support? No. But she could talk to their faces on her small phone screen and at least feel some love, however she could get it. Funny…it’s the one time as a mother I have been grateful for my children’s social media.

Life has gotten slowly back to “normal”. She eventually went back to school, picked out cute outfits, walked the halls, snuck off to The Jewel with friends on her lunch break, met her teachers face-to-face for the first time, played an actual high school lacrosse game, even laughed on a bus with her teammates…normal things started happening again. I think the kid is finally able to realize that she is going to be okay.

My life purpose is to love and protect my family; keep them alive for a life that is worth living. I have two other great kids who are creating their own life journey tapestries, but I celebrate this moment for the little one who won an epic battle this year in her bedroom. Shine on, little diamond.

Moran #3

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