Category Archives: Getting old

It’s Dark Here in the Belly of the Beast

*tap* *tap* Is this thing on? And where’s the damn light switch?

Unfortunately, I’m slipping. It’s a curious thing. You can literally be near death on the inside and no one can see. I was at the Jewel the other day, pushing my cart, blacking out on why I was actually there. Just………..pushing. I was looking at different people. Seeing if I could see into them. Is that guy in meat section ok? He looks ok. He looks like he is going to make a beef stew. He doesn’t look despondent. But that doesn’t mean he isn’t. Because I just don’t think you can tell.

In one month, I have to play a role in the horse and pony show performance I am forced to play a part in to celebrate the life of my father. It’s not that I don’t want to celebrate him. He was absolutely magnificent. But I am not ready. I’ve been through 300 days of major trauma watching him get sick, disintegrate before my eyes and then, die. I am not ready, I said I wasn’t ready, I screamed and cried that I was ready, but I. Don’t. Matter.

The weighted blanket that clutches me in the belly of the beast is crafted out of my voice never being heard. And…isn’t that ironic? When I sing, people tend to listen. But when I speak…it must be made out of invisible ink. Maybe I should have sung my despair.

I just watched “1883” on Paramount Plus and I kept thinking, My God. They must have been SO BORED all day. She just sat on her horse, looking gorgeous, flirting with cowboys and watching cattle for like, eight hours; she couldn’t even check social media. Mostly, she was just there with her thoughts (sappy voiceovers). I can’t get away from mine.

Sadly, social media is making me sicker. I just paused FB today for a week. Didn’t tell anyone. Just did it. I couldn’t look at one more thing that reminds me that I am hanging by a thread.

When I went to Florida to help pack up my dead dad’s house, I finally was able to go to our beach and say goodbye to him.

I also thought about swimming out into the ocean and never coming back. I fought that for about an hour. Then it started to rain and I didn’t want to get hit by lightening, so I figured that meant that I still want to stick around. Mostly because, me lost at sea would fuck up my kids. So I live another day.

Netflix is my BFF. Amazon Prime squirrels my sadness for chunks of my day. Swedish Death Cleaning* my house is “giving me purpose”. Today, my goal is to clean under my bathroom sink and then find one other thing to look forward to in my life to “give me purpose.” Still looking. Still looking.

Still looking.

*look it up. It’s a thing.

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The Longest Year

6/2/22

In the longest almost year of my life…dad’s health issues have taken over his Lewybodys Dementia and he’s in his last days. When LBD hit rapidly last July, after a septic UTI and hospital stay, our world was forever changed. Massive significant health problems, including surgeries and an amputation, made his confusion from LBD and his confusion of what was medically happening to him absolutely devastating to witness. Now I sit by him at his facility and he sleeps most of the time. He stopped eating a couple of days ago and it’s even hard to get him to take a few sips of water. I’m a writer, novice, but it’s my love language. I’ve barely been able to even write the utter emotional and physical despair this has inflicted on me and my family. Most importantly, on Dad. How is it possible that in less than a year, I am losing my big, strong, successful, insanely intelligent, funny, loving father? What we are all going through, this is the hardest stuff of life. I’m clinging to him in the last moments of his; praying for his calm and his peace, until he finally can be with our loved ones in Heaven. Hugs to everyone who has had to go through this. You don’t know until you know.

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Dementia Doesn’t Care About the Super Bowl

The first headline I read this morning was from Huff Post:

“Gen Xers and Millennial’s Got Into Weirdest Fight Over Super Bowl HalfTime Show”

My eyes are full of tears and I have to look away. I glance up at the hospital room TV. The halftime show star is starting, but it’s on mute. Mike and I are helplessly watching two hospital nurses shake you awake to see if you were ok. It takes about 10 minutes. You are so confused when you wake up. I have to leave to room to go cry in the hallway. Again.

We missed the half time show. But we also didn’t miss a thing. 

Happy Valentine’s Day, Dad. XO

Love,

Twinkle Toes

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Twinkle Toes: A Love Story to Dementia Dad.

The Sea Island sun blinds me when I look up to see your face. I stop-salute you and squint to block it from my eyes. You and your mustached-face looks down at me, smiling. You reach down to grab my nose and peek your thumb out of your knuckle sandwich. You hold it up and say, “got your nose!

Give it Back!” I yell, but I’m laughing and I’m chasing your serpentine. Back and forth, in and out of the water. I follow your footsteps and try to match them. I put my foot inside yours and I squish it all around. The waves are awfully loud, but I love them and then you grab me and give me my nose back.

I love any beach or water anywhere forever and ever and it’s because of moments like this. It’s safe, you are relaxed and it just means love. I have to run fast to keep up: one-two-three-four Heathersteps, in and out of the water, equal one big Daddystep. You laugh and stop and wait for me. Then you grab my hand. It’s so windy and the waves are so big and they break the silence in a way that makes me close my eyes and be happy. It smells so good. You are so tall and I look up at you and you laugh out the words, “hurry up, twinkle toes.”

I giggle when you take the shells I give you and you say “Ooooooooh, that’s a good one“.

I feel proud that I picked it and you put it in your pocket. I am twirling round and round with the sand between my toes. When I dizzy-stop, stumble and laugh, you are walking back. You’re done. I stop-salute and squint, watching you get smaller as you walk away. You yell back, “Go to mom now.

***

I’m a bad actor and I can’t fake it anymore. I am screaming inside and crying and keening and wailing. Every tiny cell of me is tired. We are now in Defcon 1. I can’t control you. You can’t figure out reason or make sense of anything. There are not people in the corners trying to hurt you. You are not being poisoned. We are not trying to kill you. I wish I could rescue you from the alien world that you are living in your head. It seems so scary and mean and awful. I’d give anything to Stranger Things you outta there.

I spend hours trying to show you how much I love you. Even when I am not with you, I still worry and wonder if you are ok. I’m so sad that you are leaving me; that you have already kind of left. The other night in the wee hours, you were yelling at me:

You do not care if I die.

You are out to get rid of me.

You are not on my team.

You don’t have my back.

When you say these things, I can handle it. Your words bounce off me onto the floor. I can step on them a little and kick them under the couch. I know you don’t mean it. I know you are sick. I am tough and I can fight them off.

Your face looks so different now. I remember being little and tracing your face with my fingertips. “Oops…got your nose.

I know you can no longer read your books; now it’s only faces. I am sorry that sometimes I don’t look at you when we talk. I try to make my face happy, but sometimes, I just can’t.

Feelings transition to some kind of desperation. I want someone there with me to see what I have to do. I need a wingman. I want someone to hug me. I need help with you. I need you to help me with you. I long for the dad I had, to give me advice about the dad I have now. I feel desert Island lonely.

This journey has given me some useful takeaways and Heather 2022 has a new criteria for friendship.: Choose the right people who deserve to hear your story. I love hearing stories of the people I love and I know they hear me back. There is nothing worse than realizing that someone don’t want all of the sides of you. I have been screaming from the inside of insides. I don’t have the energy to only listen and not be heard. I hope to replenish soon.

I think I am spending so much time writing this to procrastinate making phone calls. Calls to find somewhere we can move you away from the home that you worked so hard for and away from the life you knew. Can I call in a sub for this too? Inhale…exhale…

I took a night off from being with you last night to sleep in a real bed. Today, I head back to you and the couch. When I get in the car, I will cry. I will walk in the door with a smile. I will try not to lose it, but sometimes I do. You threw a box of tissues at me the other night. I karate-chopped it from my face and the box went flying. It was actually super funny. Wish you were there.

Love you,

Twinkle Toes

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Awe Is Not Always Happy

Round two: (better late than never.)

How is he talking to me and he looks like himself and his hands move like himself and I’ve sat in this chair across from him a million times while he sat in that chair across from me a million times? Now all his words in their order make no sense like cut up, strung up and mismatched pieces of fabric. I’m trying to smile on the outside and I’m praying he can’t tell that I’m screaming and crying on the inside.

I’m in awe, and it’s not in the fireworks way, or being at Disney way, or a nurse handing one of my babies in my arms for the first time sort of way. That’s all awe filled with joy.

Tonight he couldn’t tell me very importantly what he very importantly wanted to tell me. That’s awe filled with sad.

Falling asleep, broken heart. Scrunch tears and think of years ago, walking on a beach where he pulled me out of the water, laughed loud, called me “twinkle toes”, skipped a rock and bent down to hold my hand.

That’s happy awe.

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Sleeping On A Cloud.

I did not blog yesterday, so now I owe myself two today.

Round one: Yesterday got away from me…and then, we got a big delivery. After 21 years of marriage, we finally bought a new mattress. The one we were sleeping on was a hand-me-down from my parents and I think by the time we got it, it was already 12 years old. Current mattress situation: basically feels like sleeping on an Anglophilian-inspired straw, feather and horse hair stuffed abomination.

We bought a Stearns & Foster, just like my parent’s five-star hotel-like guest bed. While I was recently sick in our hay bed, my husband went to a mattress store, laid on a few, flopped around, called me for final approval, took the leap and paid a stupid amount of money. We had to wait over a month and we were panting for this thing to come. Finally we got word that it was on it’s way and I needed to deal with the bedding situation.

I have a problem with big box stores like Target, Costco, freaking Walmart. If I can’t see windows, I get tweaked. I couldn’t trust getting anything online, because I needed to feel everything. So I hyperventilated through Nordstrom Rack, sweated my way through Target and survived a full-on panic attack in the bedding department at Bed, Bath and Beyond. While I was doing this, number three called me to tell me that she had to leave Great America and go to the ER because her friend got sick (she is totally fine now, Thank God) and she needed a ride home. Full on breakdown in the sheet aisle. I did some lamaze breathing, called number one to go get her. He said, “Mom: Chill. I got her.”

Because of his helpfulness, I bought him new dorm bed sheets and upgraded the thread count. Mad props. I finally settled on 400 count for us and a snuggly UGGS comforter set, all in CREAM. Bold.

So yes, victory. Last night was amazing. It’s like sleeping on a cloud. The mattress is glorious and the bedding is so freaking cozy. The only negative is that one side of the comforter is literally the fuzzy stuff that’s in the inside of an UGG’s boot. Little sweaty. Will be perfect for snuggles in fall and winter. For now I’ll just keep cranking the fan on us.

I crawled in it at 6pm last night and I am still in it at 9:15am. I eventually have to get out of it to go see my dad, but for right now…

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Hank the Tank.

In January, I got a new day job, so I went a little crazy and bought a Jeep Wrangler Rubicon. It’s a 2010 and kind of beat up, but it’s been my dream car ever since I can remember and I just went for it. It’s a lot of Jeep for a “little” girl, but I was sure I could handle it. We named him Hank the Tank. I know that you are supposed to refer to your car as a girl but I think that’s sexist. Mine is a guy and he is a beast. My husband and the kids even got me the Cubbie tire cover. Bucket list item,√.

Unfortunately, I obtained him in January, the night before my husband was diagnosed with Covid and we were in quarantine, so I didn’t drive it for the first three weeks. Hank and I had a rocky start, also because the windows didn’t work and I have yet to fix a broken blinker, but still we seemed to get along ok. I couldn’t wait for summer and to take the hard top off…whip around Lake County feeling the breeze in my hair….

Did you know there is a “Jeep wave”? I didn’t know. I had some wave at me when I first started driving and I just chalked it up a bunch of really friendly people in my town. Then my good friend, who is a Jeep owner, asked me, “So you know about the Jeep wave…”

Ooooohhhhhhhhh!

OK. Aha….got it.

It’s a thing.

I was pretty excited about it. I felt like I was in a cool, new club. The next 3-4 times I drove, I did not see one Jeep. But I was on the lookout and I was going to be ready.

At last it was time. I saw one coming my way…My hands got a little sweaty and my stomach dropped.

And then it happened…They did it! They have me the wave!

They were like:

The I was like:

NERD ALERT.

I’ve chillaxed now and I think I’ve got it down. I also got “ducked”. There is something cute with squeaky ducks and I bought a whole bag of them from Target but I need to Google to figure out what to do with them. Again, nerd alert.

Truth be told, my dirty little vehicle secret….I’m so lucky and I am so grateful…I’ve been wanting a Jeep for so long, but now that I have it…well, meh.

it’s hard to get in and out of it. I almost have to take a running leap and dive in. It’s not very Rheumatoid Arthritis-friendly. I totally need one of those shelf things. Also, another problem with being so short; I have to do circus-like trapeze artist calisthenics to climb up the Jeep to put the soft top down myself. Forget about putting it back on when I’m alone. I actually have to get number one and/or my husband to help me. We are always battling with Car Tetris in the driveway, so it’s not even possible to just leave it off and park in the garage. It’s a work in progress. Someday soon I hope to make some real actual progress.

I can definitely see me pawning it off to one of the kids in a year or two. If I just had a car with a little button I could push and the top would go up and down. Up…and down….If only…

Added to my new bucket list.

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Now what.

Day 6.

I need to put one of my new iTags on my actual purpose, cause I’m having trouble finding it.

I’m not even a week in with my 365 blogapalooza commitment and I’m already dreading writing about my One Big Thing today. It’s depressing.

I’m flailing. I’m in a funk. I’m blue. I’m lying here trying to find my damn solace. I’m feeling it’s somewhere along the lines of pulling up my big girl pants, getting over my bad self, making a list of things I need to get done and just freaking doing them.

But from the minute I woke up this morning, I’m finding it really easy to be sad. Sad about being sick, sad about my dad, sad about number one going back to college, sad about the sinking ship that is my music career, sad about the Rizzo, sad about not having a job.

Maybe I should just give myself a day to BE. I’ve been doing such a bang-up job for the last seven months wearing myself thin, not taking care of myself and treating myself badly, that it’s become a hard habit to break.

Welp, there you go. This is why I love writing. I just spoon fed myself my answer and found my literal purpose for the day. I’m going to give myself a hug, lay on my hammock, go out to lunch with my parents, enjoy my family. I can continue to wallow tomorrow. Today’s mission: Sunday funday.

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Egads, DMV. You’re a Wreck!

Day 5:

Omg. That was an adventure.

Things effected by Covid that are ok, but still not quite right: movie theaters, music concerts, some shopping experiences and the freaking DMV. It’s never been a walk in the park, it’s always usually a total PITA, but now it’s kind of a mess.

We had two reasons to go to one of the Illinois Department of Motor Vehicles.

1.) New Driver’s License

Number 2 sadly, because, genetics…lost his wallet last week with his license, debit card, and some special un-needed but sentimental keepsakes. Some of those things include his Great America pass since he was nine, an old school ID, his social security card….YOWZA. Ok, that one was needed. Insert super big face palm. I feel like we need to report that or something.

And he also lost $100 in cash; hard-earned tips from the restaurant where he works. The day he lost it, he spent three stressed and upsetting hours retracing his steps, talking to all the management he could at the three places he went, searched his car multiple times, left his phone number everywhere. It’s gone. A bummer of a life lesson.

Sidenote: I just can’t relate with a human who would find a wallet in a parking lot and not try to do the right thing. It makes me so sad. I hope they get a flat tire, they ruin their favorite shirt in the laundry and a bird poops on their head.

2.) Driver’s Permit

Number three needed her drivers permit. She finished the class part weeks ago and was scared she was going to forget everything. Which I get. But dammmnnnn it’s hard to get an appointment. You have to wait weeks. It’s such a clogged drain that they have given people who have an expired license a six month extension. The best option for us with a busy schedule was just to suck it up and go.

The first time we tried to get her permit was a disaster. It was about three weeks ago. I had to take a half day off of work, which was hard in itself, and I was not having a good tummy day. I was trying my best to smile and be excited for her, but inside, it felt like there was a tiny, little angry person living in my intestines, repeatedly stabbing them with big fork.

A lot of my stomach issues are stress-related, so this wasn’t helping. I raced home from work and grabbed all the essential documents needed: social security card, a bill with her name on it, her driver’s school paperwork, a copy of her birth certificate. Let me repeat that, a COPY of her birth certificate. That’s what the school told me. A CO-PY. Or maybe they didn’t say that. Maybe it’s just…me. We all know it’s most probably just me.

The facility wasn’t close. We make the trek out to Schaumburg and got there at about 1:30pm. We pull in:

That scenario, for me in particular, was like an irritable bowel horror movie.

We waited in line and soon we were not the last people; we were giddy. She was so excited to get this…I was a little teary that I was already at this milestone with my baby. I had also already quietly made a plan that if I needed leave the line to run inside to the bathroom, I would do it very stealthily and with conviction. But so far, so good.

There was an older gentleman busker playing mediocre violin, but I was feeling jovial and supportive, so I gave #3 twenty bucks to go toss it in his guitar case. I told her to do it dramatically so everyone could see. I thought we would start a tip trend when everyone saw us do that. Crickets. Come on, humanity!

Finally, an hour and a half in; we were about 30 feet from the front door. An employee was checking people’s documents to prep everyone who was about to enter. I handed him everything, while I made what I thought were witty, funny and adorable side comments about our line wait. Number 3 nudged me a little, rolled her eyes almost out of her head and pretended that she didn’t know me. Then the man said, “I‘m sorry but this is a copy of her birth certificate. We need the real thing.”

What?” I said?

This is a copy of her birth certificate. Do you have an original with the stamp on it?” When he said that, I started to get a little dizzy, I couldn’t seem to find any air and his voice was warped like Charlie Brown’s teacher. Number 3 was shocked and looked at me like a just ran over a baby bunny.

I was horrified, She was horrified. But…I…you see…I ….was digging in a dark closet, trying to grab things out of our file cabinet…it’s looked like a birth certificate, it felt like a birth certificate, it smelled like a birth certificate…I was going to throw up. My sweet daughter. I’m not sure what embarrassed her more, the fact that we had to leave in front of everyone or the very obvious crying of her very distraught mother. What a SHIT. SHOW.

Pivot, heal, relax, re-group, re-charge.

Three weeks later, we tried again. I grabbed number 2 to kill two birds….This time we got up at 6am, headed out to Waukegan, whipped through Dunkin’ and pulled in…

OK, ok, ok, OK. It wasn’t that bad. The weather wasn’t horrible and we actually kind of had fun. In true Moran fashion, we made lots of new besties around us, with people we will absolutely never see again. Number 3 was so nervous for her test, so we pulled up an online practice test and she was asking me for all the correct answers. Dear Lord…the wrong parent took her. Number 2 wasn’t much help either…who can remember these little things?

We made it to the hot spot; the entrance door (past the scene of that last crime), so I felt victorious. You can’t see it because of the glare, but right in the doorway behind the glass, the security guy had this huge Uzi megaphone thingie and it was right near me when I was waiting there and it took every little strength in my body not to pick it up and yell “BREAKER BREAKER ONE_NINE!”

Number 3 said, “MOM, NO.” She knows me.

Inside, the employees were wonderful. Kind, helpful and sweet, we went through both processes painlessly. It’s not their fault that China created Covid and now we have long DMV lines. #2 and I had to go outside and wait for #3 to take her test and when she came out smiling, we knew she passed. Easy peasy.-ish. We were home by 10:00am!

And…this is the best.

“Yes, Sir, That’s My Baby…No Sir, I Don’t Mean Maybe!!”
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I Lose Everything. The End.

Day 3:

My husband gets me.

I try to think when my loseeverything-itis started to get really bad. I think it was after I began having babies. Maybe not, but I usually blame everything else on that. Even as a kid, I was always flighty. I was perpetually ditzy, often confused, very emotional, constantly disorganized. However, I was kind of adorable and that helped me get away with a lot. This very annoying problem I have has definitely gotten worse over the years. Also, I am also not so adorable anymore, so it’s harder to get away with it.

My incredible friends get the brunt of it. I am constantly leaving my shit everywhere. Boat days are the worst. Shelly has my flip flops, Hank has my towel, Evelyn has my sunglasses and we are all still looking for my phone. I think for awhile it was funny, but now it’s just annoying, sprinkled with a hint of sadness. This one time, I left my iPad on the top of my car. You heard me right. I was in between two back-to-back gigs and it was a very stressful day. I had to run home to get something (probably something I forgot) and I totally also forgot about the iPad. It fell off my hood and someone ran it over with their car.

My iPad is my life blood when it comes to my singing jobs. I was devastated, disappointed, ashamed. A week later, for Christmas, those same incredible friends all chipped in and bought me a new one, so I could keep on playing music. Yep. Incredible. My heart still overflows, because they love me so much, despite…me.

So it was cute my husband bought me the key ring. The truth is that I just recently lost my keys and it had all of our new car FOB’s on it. I think I threw them away by accident. I guess you can say this gift is more for him, than me. He can finally take a break from digging in the garbage.

It’s not the first time someone I love has bought me a lost and found tool. A dear friend of mine gave me a purse a couple of years ago and three Apple tiles. We hid the first one inside the very cute purse. We put one my wallet. Super helpful. Then we put one my keys. That was blissful and happy time in my life. I knew where my shit was. Eventually they lost their charge and chaos ensued. And here we are again.

I can kind of guess what you’re thinking. “Pull yourself together, Heather. Put everything away in your purse and put it in a safe and remember-able place everyday.” Now YOU’RE adorable, but nay, nay. Too easy.

Picture, if you will, a big tornado of chaos. That’s me. I am always in a hurry, always late for something, always in a perpetual frenzy of mayhem, bewilderment and perplexity. In short: it is very, very difficult to be me.

Recently, I bought a key hook to put right in the doorway when you walk in the house. Brilliant, the family said! Well thought out, the family said! You actually have to put your keys on it, the family said! They use it. It comes in really handy when you have four drivers and we play car Tetris every day. The only problem is just that I keep forgetting to put my keys on it. DAMMIT.

I feel like there is money to be made on my imperfections. I smell invention. I’ll see your tiles, Apple, and I will one up you with little chip stickers. Cheaper, more compact and you can stick them on anything. For instance, I really also lose my lip gloss about for times a day. It’s incredibly frustrating because I love a good moist lip. What I need is an affordable little itty bitty sticker on there, with a microchip, that I can program in my phone and when I can’t find it…push the button…beep beep beep….lip gloss found under my car seat. Lip crisis averted.

I could put one on the portable fan in my room because my freaking kids keep taking it. It’s really not that HARD to find it when it’s missing, because I just have to burst in yelling to one of their rooms. But If I had an annoying little alarm, I could really drive it home with them to stop taking my stuff. I could just incessantly beep it in their rooms until they can’t stand it anymore and they bring it back. I absolutely need one for my hair straightener. Number three is a double dog down thief. She’s definitely at her absolute worst when she steals my very posh shampoo and conditioner, brings it in her shower, leaves it there and I don’t discover it until I am naked, wet and super pissed off. Definitely need a little sticker for that. *Add waterproof to business plan.

Those are instances of criminal thievery by my children. But I also need help with things that I lose like…documents. Medication. Numerous articles of clothing. Clothing tags….I can sew them in like camp. Yes! *Add name tags to business plan.

While I am at it, “it” being creating new things to help me get through my day, I should also look into memory care. Things that help preserve the brain I still have left and try to stop it from rotting, or whatever it’s doing up there. Maybe I will start doing Sudoku with a clicky pencil. I can suddenly take up gardening and consume fish oil. In the end, I think I just need to slow my roll. Continue my quest to heal my sick body, gets some damn sleep and stop sweating the small stuff.

“People give the worst advice about lost things. Retrace your steps. Pray to Saint Anthony. Think about where you last saw it. But that doesn’t apply to the things that matter. Those are right in front of you, except they can’t be found by looking for them. Only by looking at everything else.”
― Kristen Lepionka, The Last Place You Look

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