Tag Archives: daughters of dementia

The Longest Year

6/2/22

In the longest almost year of my life…dad’s health issues have taken over his Lewybodys Dementia and he’s in his last days. When LBD hit rapidly last July, after a septic UTI and hospital stay, our world was forever changed. Massive significant health problems, including surgeries and an amputation, made his confusion from LBD and his confusion of what was medically happening to him absolutely devastating to witness. Now I sit by him at his facility and he sleeps most of the time. He stopped eating a couple of days ago and it’s even hard to get him to take a few sips of water. I’m a writer, novice, but it’s my love language. I’ve barely been able to even write the utter emotional and physical despair this has inflicted on me and my family. Most importantly, on Dad. How is it possible that in less than a year, I am losing my big, strong, successful, insanely intelligent, funny, loving father? What we are all going through, this is the hardest stuff of life. I’m clinging to him in the last moments of his; praying for his calm and his peace, until he finally can be with our loved ones in Heaven. Hugs to everyone who has had to go through this. You don’t know until you know.

Tagged , , , ,

Dementia Doesn’t Care About the Super Bowl

The first headline I read this morning was from Huff Post:

“Gen Xers and Millennial’s Got Into Weirdest Fight Over Super Bowl HalfTime Show”

My eyes are full of tears and I have to look away. I glance up at the hospital room TV. The halftime show star is starting, but it’s on mute. Mike and I are helplessly watching two hospital nurses shake you awake to see if you were ok. It takes about 10 minutes. You are so confused when you wake up. I have to leave to room to go cry in the hallway. Again.

We missed the half time show. But we also didn’t miss a thing. 

Happy Valentine’s Day, Dad. XO

Love,

Twinkle Toes

Tagged , , , , , , , , , , , , , , , , , , , , , , , , , ,
%d bloggers like this: